Though the Flair for Rare Gala has come and gone, the vital work of the Sanfilippo Children's Foundation continues. As a proud sponsor of this event, Beneficial Beer is honoured to have played a role in supporting such an important cause.
A Devastating Disorder, A Relentless Fight
Sanfilippo syndrome is a rare genetic disorder often described as "childhood dementia." It's a heartbreaking condition that robs children of their abilities. With a life expectancy of just 12-20 years, these young lives are cut painfully short.
The Sanfilippo Children's Foundation has a mission to drive research for a world without this cruel disease. Their work is nothing short of heroic and determined to give these families hope.
Congratulations to the Winner!
Before we look ahead, let's take a moment to celebrate the lucky winner of our "Year of Non-Alcoholic Beer" auction package - Derek Wintle! We're thrilled that this prize, valued at $830, will bring a year of tipsy-free enjoyment to one of our supporters.
How You Can Make a Difference
The Flair for Rare Gala may have come and gone, but the fight continues. Even if you couldn't attend the event, there are still ways you can support the Sanfilippo Children's Foundation and help turn heartbreak into hope.
- Donate: Every dollar makes a difference in funding vital research and clinical trials. Visit sanfilippo.org.au to make a contribution, no matter how big or small.
- Spread Awareness: Share the Foundation's story on your social media channels. The more people who learn about Sanfilippo syndrome, the more allies they'll have in the battle against this devastating disorder.
- Get Involved: Attend the Foundation's future events, volunteer your time, or explore other ways to lend your support. Together, we can make an impact and accelerate the progress towards a cure.
Beneficial Beer's Ongoing Commitment
As a sponsor of the Flair for Rare Gala, Beneficial Beer is proud to have played a part in this important event. But our commitment doesn't end there. We'll continue to find ways to support the Sanfilippo Children's Foundation and their relentless pursuit of a world free from Sanfilippo syndrome.
Let's Keep the Momentum Going
The Flair for Rare Gala may have been a night to remember, but the real work has just begun. By coming together as a community and rallying behind the Sanfilippo Children's Foundation, we can turn heartbreak into hope.
Join us in this mission. Every step, every voice, every act of generosity brings us closer to a future where no family has to face Sanfilippo syndrome alone.
